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Tag: ms over 10 years

Dysphagia and Multiple Sclerosis

Dysphagia and Multiple Sclerosis

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Dysphagia simply put is difficulty swallowing. It means it takes more time for food to travel from your mouth to your stomach. Why this affects people with multiple sclerosis? Muscle weakness once again. The good news is it is seen more in advance stages of the disease but it still can appear at any time. It can be mild or advanced. Hey, it’s MS. It has no set plan of attack. According to WebMD https://www.webmd.com/multiple-sclerosis/speech-swallowing Symptoms of a Swallowing Problem…

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Ocrevus infusion one week away

Ocrevus infusion one week away

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Let’s see if I can have one of my infusion without any issues. I’ve already received the call to verify my new insurance information and have heard nothing since. Last time was the mistake where they once again order the split in the medicine and I did 300mg two weeks apart when I was supposed to take the full dosage of 600mg one time. So even though I’ve been on Ocrevus now for over a year, I still have yet…

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My inherited family’s bbq

My inherited family’s bbq

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I was invited to a bbq today that I actually declined. I declined because of the elevator issue in my building https://multipleexperiences.org/2018/08/30/im-stuck/ and also because the bathroom is up an entire flight of steps. The reply to that was “we aren’t taking no for an answer. We will help you up the steps and into the building, whatever we have to do.” Who are these people? Well these are my ex-boyfriends family. I’ve developed a relationship with them that stretch…

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A quiet Saturday

A quiet Saturday

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It’s just me today. Well me Zoey and Marshmallow. The elevator in my building won’t be fixed until sometime next week so I’m a little stuck. I can’t put my scooter together or take it apart by myself. Kind of leaves me with no options for getting downstairs or back upstairs while I’m alone. You know what, I really don’t mind. I’m exhausted. I think I’ve been exhausted for the past two months. I have no complaints being home by…

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I’m stuck

I’m stuck

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Elevator is still not working. A special part had to be ordered or something. I am stuck in my condo on the fourth floor. I’d be able to get downstairs with my aid. I do better going down. Of course then once I came home I’d be in trouble. If my aid was with me I could use my scooter and go to the first building. No big deal but tonight is my hair night. Meaning I get my hair…

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The Good Samaritan

The Good Samaritan

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I’m happy to say they still exist. There is a lovely woman who lives on the first floor of my condo. Her unit faces right where I park my car. She has come out on numerous occasions to help me out of my car if I’m alone or to open the door for me. She’s just lovely but yesterday she did the most gracious thing. At 6:30 my doorbell rang. She came up to tell me that my elevator and…

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Another nursing assessment today

Another nursing assessment today

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The assessment today though is important because it’s with my actual insurance company. I already spoke to my case manager who is so awesome and called me back on her private line. She explained to me if they try to give me less hours not to sign anything. This way the case goes into review and more than just this one nurse assessment has a say in my hours allocated. I’m not nervous because it is what it’s going to…

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Back home

Back home

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I realized something being away, my home is definitely the easiest place for me. I love my sisters house it is absolutely beautiful. It’s very easy for me to get around on the first floor. However, there is no bathroom with a shower. They made a shower outside which is really cool but it’s a little more difficult for me to get to. It’s difficult for me to navigate her outside property. The outside property is so amazing but getting…

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My optic neuritis story

My optic neuritis story

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My first unofficial MS relapse was optic neuritis in 1997. Six months before my diagnosis. The optic neuritis wasn’t even diagnosed at the time of the relapse it was realized after my diagnosis. I was working in a fast food restaurant as an assistant manager, who was about to be promoted. However, my manager at my current location and I didn’t always see eye to eye. She added a lot of stress to my situation at work. I couldn’t wait…

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My childhood home

My childhood home

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It can be so hard sometimes. Each step more laborious than the last. My step dad has a SUV and getting in and out of the car is an ordeal every time. But what upsets me the most is going to my mom and step dads house. The house I grew up in is so difficult now for me to get into. There is a deck on the outside of the front of the house. When it was redone, they…

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