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Tag: ms over 10 years

Fall has finally come, my MS thanks you

Fall has finally come, my MS thanks you

I think it’s finally official, the fall has finally come to New York. For all those who don’t believe in global warming him, it was 77° in New York yesterday and it was warm and humid. It was gross. For people with multiple sclerosis, or at least me with multiple sclerosis, it’s the worst weather I can deal with. I wait every year to get through the summer and it just seem like this one never would end. My air…

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When to go into a wheelchair?

When to go into a wheelchair?

There is only one answer to this, when you absolutely have to!!! Stay on your feet as long as you can. Once you’re in a wheelchair full time your legs will weaken making walking more and more difficult. I know this all but here’s my problem, walking is getting more and more difficult for me. I have both good and bad days but let’s say I go to the small grocery store and walk with my rollator, I can walk…

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The way we were…

The way we were…

I think for anyone that has had a chronic illness for any length of time has sat and remembered what it was like before the illness. Or at least what it was like before it got really bad. We remember when we used to dance, run, or have any  exorbitant amount of energy. We remember when we taught our child maybe to ice skate or ride a bike. Maybe you remember Sunday afternoon hikes up the mountain. All these wonderful…

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My week with a cup half empty

My week with a cup half empty

Happy Friday to everyone. All is right in the world again. I am awake, although slightly reluctantly. I’m on my couch with a dog on either side of me. My daughter is home for the weekend. I saw her for a total of 10 minutes yesterday, from the train station back to house before she left again. That’s ok, I’ll see her today. I have an aide coming today. I’m going to get some soup cooked and maybe a vegan…

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No, I’m not lucky

No, I’m not lucky

There’s a reason I have an aide for eight hours a day. There’s a reason I don’t work anymore. Sometimes I feel like I’m running a scam, that I should be working or I don’t need an aide eight hours a day. Especially when someone says lucky you. Let me explain something to you and myself, I’m not a lucky girl.  I’m not a lucky girl that I’m on full disability and don’t work. I’m not a lucky girl that…

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I’m still Vegan, except my coffee

I’m still Vegan, except my coffee

I haven’t talked about this topic in a while. Yep, I am still vegan,  except my coffee. I’m still adding a little bit of half-and-half, so shun me.  I  just cannot handle that non-dairy milk alone in my coffee cup. Other than that, I have no issues, no cheats, no tastes no nothing. My weight? Well I gave up my scale and I checked in this month and it’s holding steady at 150.5 lbs. Not my thinnest number but definitely…

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Opening again to the possibility of a relationship

Opening again to the possibility of a relationship

For the first time in a long time, I put in my morning affirmations an openness to meet someone. It’s been probably close to a year. My future person, if there is one, isn’t on match or plenty of fish. If I meet someone it’s being at the right place at the right time. Who is my guy? Well I can tell you who he isn’t. He’s not a sex crazed nympho-maniac. I don’t think I was ever in this…

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Damn fatigue a short blog post

Damn fatigue a short blog post

I’ve been so tired lately. I hate this feeling. I have been napping every afternoon for a few months now. Not always a long nap but at some point my eyes just have to close. The last few weeks have been really rough. I’m just wiped out doing anything. I had therapy today. I just am spent. I really want to crawl back into my bed and stay there for the day but I won’t. I’ve blogged everyday since I…

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Is it an MS symptom or not?

Is it an MS symptom or not?

If you’ve suffered through this disease for any amount of time, something strange will happen in your body and you’ll ask yourself this question. It’s normal. Eventually the answer stops making you crazy and you just deal with it. However, I believe that the longer you have the disease the more you know what is or isn’t the disease. Even better you know what symptom is making other problems of yours worse. Like today, I realized my shoulder tendonitis has…

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Peri-menopause, menopause and multiple sclerosis

Peri-menopause, menopause and multiple sclerosis

The topic of peri-menopause has been coming up with my friends because we are at or around that age. I was curious of the symptoms of peri-menopause which webmd has listed as: Hot flashes Breast tenderness Worse premenstrual syndrome Lower sex drive Fatigue Irregular periods Vaginal dryness; discomfort during sex Urine leakage when coughing or sneezing Urinary urgency (an urgent need to urinate more frequently) Mood swings Trouble sleeping Great, considering about 3/4 of that list are also MS issue…

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