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Tag: Ms progression

Ocrevus infusion side effect gone better than past medicines I took

Ocrevus infusion side effect gone better than past medicines I took

Good morning. I’m happy to report I am finally feeling better. I actually started feeling a little better on Saturday. I went swimming and was able to still get around my condo without having that bone feeling fatigue. So it took about 6 days for me to start feeling better. By Sunday I was good. It was a tough week but I don’t have to worry about the infusion again until March. I can handle that. I remember when I…

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Weight, Multiple Sclerosis and me

Weight, Multiple Sclerosis and me

I had my physical yesterday and brought up my favorite topic, weight. Once again I put on a couple of pounds. This has been a very frustrating year for me when it came to weight. My doctor finally made some sense as opposed to just saying it’s your multiple sclerosis. He explained why. Yes, I do swim which is great, but I also sit around quite a bit. As my symptoms have gotten worse, my muscles have atrophied to a…

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No Ocrevus infusion yet….

No Ocrevus infusion yet….

You just can’t make this stuff up. I think the last problem has been finding an agency to come to my home for the 5 hour infusion. The reason I say I think is because I’m not even 100% sure that is what the issue is about. If that is the hold up I told them I could do it there but now that might not be an option. I’m very confused. I’m still not sure if I’m getting the…

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Medical news today article about MS ‘mediator of the disease’

Medical news today article about MS ‘mediator of the disease’

Interesting article in medical news today. https://www.medicalnewstoday.com/articles/323071.php?utm_medium=gplus&utm_source=dlvr.it Brain inflammation is a marker of multiple sclerosis, Alzheimer’s, and some psychiatric disorders. A new study finds a subtype of brain cell that is key in neuroinflammation, bringing us closer to new treatments for multiple central nervous system diseases. Astrocytes are named for their star-like shape. Image credit: GerryShaw Multiple sclerosis (MS) affects at least 2 million people worldwide. Recent estimates suggest that 1 million people in the United States live with the…

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Keto diet for MS

Keto diet for MS

Wouldn’t be me if I wasn’t extreme. Vegan to Keto, that’s extreme. Why would I even think about this? A movie called the Magic Pill on Netflix. Ironically, it was watching Forks over Knives on Netflix that I became Vegan. My diet isn’t working anymore and hasn’t been working. I’ve been maintaining a ten pound unexplained weight gain following a plant-based diet and tracking on weight watchers. This past week I put on an additional 4 pounds. I don’t eat…

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Dysphagia and Multiple Sclerosis

Dysphagia and Multiple Sclerosis

Dysphagia simply put is difficulty swallowing. It means it takes more time for food to travel from your mouth to your stomach. Why this affects people with multiple sclerosis? Muscle weakness once again. The good news is it is seen more in advance stages of the disease but it still can appear at any time. It can be mild or advanced. Hey, it’s MS. It has no set plan of attack. According to WebMD https://www.webmd.com/multiple-sclerosis/speech-swallowing Symptoms of a Swallowing Problem…

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Back home

Back home

I realized something being away, my home is definitely the easiest place for me. I love my sisters house it is absolutely beautiful. It’s very easy for me to get around on the first floor. However, there is no bathroom with a shower. They made a shower outside which is really cool but it’s a little more difficult for me to get to. It’s difficult for me to navigate her outside property. The outside property is so amazing but getting…

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My childhood home

My childhood home

It can be so hard sometimes. Each step more laborious than the last. My step dad has a SUV and getting in and out of the car is an ordeal every time. But what upsets me the most is going to my mom and step dads house. The house I grew up in is so difficult now for me to get into. There is a deck on the outside of the front of the house. When it was redone, they…

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A win is a win

A win is a win

I swam 25 laps. Yippee!! I drank water before and during my swimming. I had little aches but they didn’t last long and weren’t severe at all. This was the first time I was able to do 25 laps in weeks. It is silly but I’m very excited. It’s the small things with MS. No matter how small a win is I’ve learned to appreciate the win. I’ve dealt with MS for 20 years. I spent most of those years…

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Disability vehicle

Disability vehicle

I went to look at one yesterday. It was one of those things that you had to mentally prepare for because you need one and then there’s the sticker shock. Not even sure which part is worse. I must say when I took my scooter into the back of the vehicle with such ease and then was able to transfer to the driver seat, I knew it would just make such a difference in my life. As much as I…

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