It’s been a strange couple of days. I’m finally able to start taking my high dose biotin again. If you read any of my other threads on biotin, and there are many, what mostly showed in the biotin is that my walking speed increased by seven seconds. This is according to my neurological test by my doctor. However I’ve stated, and I still stand by, that biotin helped do more. Besides noticing more weakness in my legs and hip area,…
I haven’t taken a high dose biotin in about a 2 1/2 weeks. I have to admit there is a change. The only thing with MS, you just don’t know what the actual culprit is. I’ve been very weak in both my hip area and my thigh area. That’s causing a greater difficulty than normal getting up if I’m down on the floor. I’ve also had major fatigue again. Where I was sitting down and my eyes start closing whether…
It’s 20 years that I’ve dealt with my multiple sclerosis. When I first started doing research on my own illness, it was stated that most people go into the second stage of the disease after about 10 years. The second stage of the disease being secondary progressive MS. Most people start off in relapsing remitting and, at the time, it was said that 80 percent of people in this stage will go into secondary progressive around that 10 year mark….
I’ve been on weight watchers now for over a month, I’ve lost a total of a pound. I’d love to explain what was going on, but I can’t. I’d lose one week and gain the next week. I’ve been tracking my food, staying away from sugar, and not cheating. There’s no answer to what’s happening. In all honesty, it’s one of the reasons I stopped being vegan. I really thought I was gaining weight because I was eating too many…
This blog was inspired by another MS blogger, who like me, has had this disease along time. Her positive spirit is always an inspiration. https://trippingthroughtreacle.com/2017/11/28/accept-adapt-succeed/ It wasn’t one time, it’s been many times. The first was the day I got my diagnosis. I didn’t understand what MS was. There wasn’t an internet yet I could search. I had to look it up in an old set of encyclopedias that were in my home. It had maybe two paragraphs in the…
What’s your worst and MS symptom, besides fatigue ? At first I would’ve always answered the numbness, but eventually you get used to it. Not used to it in the sense that it feels normal, use to it in the sense that this is how it is. My hands and fingers are so numb all the time. I’ve lost all tactile feeling and sometimes can’t tell the difference between an item that is wet or dry, cotton or silk and…
It’s a dreary day today. It’s raining outside. My apartments all dark except for the light of my iPad. That’s OK, I don’t have much going on except for packing. I’ve been talking so much about my new place I haven’t talked much about MS. I finally was able to see my physical therapist to get some exercises for when I fall and there’s nothing around me to help me get up. I’m on the physical therapy maintenance program so…
I received a comment yesterday, on an older blog, about my Ocrevus infusion. What I found interesting is she’s had multiple sclerosis for 36 years and she’s first going on a disease modifying therapy. First of all I have to say, 36 years within any DMT, that is amazing!!! I know other people like that or that have stopped taking any of the disease modifying therapy drugs for a variety of reasons. I never had that option. My multiple sclerosis…
If you’ve never read my blog before, I invite you to look through the search box and find my numerous posts on biotin. If you don’t want to take my word, this is an article from the web with the doctor who has been conducting the clinical studies on high dose biotin in multiple sclerosis. https://multiplesclerosisnewstoday.com/2017/05/09/medday-new-phase-3-trial-and-belief-in-biotin-potential-to-treat-progressive-ms-interview-with-frederic-sedel/ My MS doctor had read the notes on the clinical studies and started me on biotin back in December of 2016. With biotin being a…
Going to the neurologist are usually a bittersweet day. I really like my neurologist in the city, she is a wonderful doctor. I honestly couldn’t ask for more compassionate, caring and understanding for MS. That being said, there’s limits to what could be done for me. Since seeing her regularly I’m on my third MS drug that I started back in September, which is Ocrevus. I can say that I was on Rituxan prior to this and the changes only…
