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Tag: MS

A ramp for the balcony and a new closet floor

A ramp for the balcony and a new closet floor

I’m happy to report all the work in my condo is now complete. I had some other little projects done as well as fixing the closet. We re-touched my hallway from the scratches I’ve made with the scooter. I’ve hit into the walls many times and the walls were starting to annoy me. I had a ramp made for my balcony. I can now get out there with my scooter to clean the dog pads as well as to sit…

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Why doesn’t fatigue ever go away?

Why doesn’t fatigue ever go away?

It’s another one of those weeks. I overdid it on Tuesday. Overdoing it consisted of sitting at a table helping family with papers and making some phone calls. Why I was so crippled from that I can never understand but I was….completely. Then the migraine started. That was just the beginning because I woke up Wednesday with the migraine and I was still exhausted. My aid was sick too so it was just me. I managed the day ok but…

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My Apple Watch

My Apple Watch

I thought it was going to be so easy, after all I’ve had my iPhone, iPad and my iPod forever. It is not the same thing. I’ve learned that really fast. Thankfully I signed up for the online session with Apple to teach me how to use my watch today at 11.  Every morning I’ve woken up to a different face screen. I have tried to lock this watch at least six different times so that the screen doesn’t…

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Wednesday update

Wednesday update

First an update from the blisters and Rituxan Blisters and Rituxan. Doctor wants me to start washing all my clothes in free and clear detergents. I really could have called that one. She wants to rule out allergic reaction to any detergent regardless how long I’ve been using it. I get that understandable but the bras I’ve been wearing lately are actual bras. Like with the clasp bras. Bras I gave up on years ago because my hands can’t do…

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Blisters and Rituxan

Blisters and Rituxan

I am at my doctor’s office for an appointment that has been canceled twice. Checking on those blisters that are still appearing under my breast. Blisters on breast. Allergic reaction to Rituxan. Originally deemed an allergic reaction to Rituxan because they appeared within hours of doing the infusion, they are still appearing. My neurologist was the only person who didn’t think it was a reaction to Rituxan even though it said specifically on the Rituxan site: https://www.rituxan.com/patient/starting-rituxan/rituxan-safety-information.html Severe Skin and…

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Thursday dealings

Thursday dealings

We played trivia pursuit in the condo club yesterday and I’m happy to report I actually knew some answers. For once I helped my team. We didn’t win because we didn’t finish the game but we were in second place. I was proud. That is not an easy game especially the original edition. They are officially doing work on the empty lot for that hotel. I still can’t find any new plans since the one from 2015 but work has…

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Thank you everyone for my handicap van

Thank you everyone for my handicap van

Bubba is back. Bubba is the name I gave to my handicap van. He’s a big boy so Bubba seemed fitting. Turned out it only needed a battery. Good to know that even as the battery dies the ramp still works. Well $200 later he is fixed, sort of. The back sensors that were installed when I bought the car aren’t working. I asked the place that was fixing the car to fix those too but they can only be…

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Scary MS symptom strikes again

Scary MS symptom strikes again

I wrote a text to my mom at 5:38 that said I almost choked to death, I’m still shaking. I was certainly grateful to be able to write the text and happy to be able to write this blog. I was eating a sugar free Swedish fish and a small piece went down my throat and got stuck. I wasn’t able to cough it out at first and wasn’t able to breathe. I can’t say what happened because it was…

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Handicap Van going to shop…

Handicap Van going to shop…

I got in my car yesterday turned the key and nothing happened. The radio worked, my lift comes out, the lights on the dashboard come on but the car doesn’t start. Thinking the battery we gave it a jump and tried and tried and finally the car turned over. Phew. I really didn’t want to miss mahjong. I even turned the car off and on briefly to make sure we were good to go and we were. Off I went….

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When MS limitations are a problem

When MS limitations are a problem

I was in a bad mood yesterday. I don’t normally have bad moods that last anymore but yesterday I did. I just didn’t snap out of it and truthfully I am not sure I wanted to. I was upset for my daughter Love to my daughter which certainly set the stage for my day but then just little things got to me. Dumb things. The phone constantly ringing drove me nuts. An email I was answering disappeared. My favorite shirt…

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