I feel a little down since my neurologist appointment the other day. I haven’t shaken it off. I’m not down about having MS, I’m down about MS causing me to gain weight. Between the medicine, my age and lack of physical ability I can’t control my weight and I am very sad. I spent my entire life battling my weight. I was always up and down on the scale since I was a teenager. I’ve read about and tried every…
I made the decision to hide my profile for the few summer months. I get too overheated being out and about in the summer heat. It just isn’t the right time for me. I realized a few things in the short time I was active both about myself and others. There are people out there that could have interest in someone in a wheelchair. The interest varies I’m sure but I did get contacted by many people with my main…
I didn’t cry. I didn’t leave happy but I didn’t cry. I don’t leave with good news anymore so it is hard to be upbeat. I had three things on my list to discuss: Bathroom issue Fatigue Weight All discussed in my blog yesterday Neurologist check in tomorrow. This was the outcome. Bathroom. I was correct and I’m sorry to say this is a common problem amongst people with multiple sclerosis, due to lack of muscle control to lead to…
I have one of my neurologist appointments tomorrow. I have two neurologists. One is the specialist in NYC at one of the big hospitals. She prescribes my main MS drug, currently Rituxan, plus recommends anything in clinical trials like biotin or statins. She’s a great neurologist but I don’t consider her my main neurologist. That is the one I have the appointment with tomorrow. This is the neurologist that diagnosed me 21+ years ago and has been my doctor the…
Summer is a great season. It’s many people’s favorite. Being outside at the beach, on a boat, or at a pool basking under the sun’s warmth. However when you have multiple sclerosis, or any neurological disease, chances are it is not. As that temperature rises outside all of the MS symptoms act up making it a difficult season. This is called the Uhthoff Phenomenon. Uhthoff’s phenomenon (also known as Uhthoff’s syndrome, Uhthoff’s sign, and Uhthoff’s symptom) is the worsening of neurologic symptoms in multiple sclerosis (MS) and…
I have to share my exciting news: I would like to personally congratulate you as your blog Multiple Experiences has been selected by our panelist as one of the Top 50 Multiple Sclerosis Blogs on the web. https://blog.feedspot.com/multiple_sclerosis_blogs/ This was a big thing for me since so many of the blogs that I read and follow or on this list. This list is my list for reference and information as well as my blogging friends that I look forward to reading about. To be…
I had physical therapy in the morning. I didn’t do everyone of my exercises but I did all of my hard ones. My therapist and I cut it short because I actually started overheating. My cheeks turn red is my first sign. I start becoming warm even though I may or may not be doing much and then I start sweating. With that my MS symptoms get worse. This is why I rarely wear blush on my cheeks because I’d…
So far nothing else is happening on plenty of fish. I must say that I was completely turned off by my first encounter First POF date that I certainly haven’t put much effort into the site. I’ve exchanged some emails with a few men but nothing to write about in a blog post. One guy keeps texting me because I made the error of giving him my cell however after he wrote this message Open your loving heart to me…
I’ve been really good lately. Especially since I switched to my wheelchair outside my condo. I went from falling almost daily to a couple of times in a month. That’s a big difference. It goes to show you how much the walking was really causing me to just exhausted myself. Yes I needed the van to make my life easier but I also needed to admit to myself the time has come and I really couldn’t walk anymore. It was…
The heat, the heat is here and it is not making life an easier. I played mahjong and I could barely hold myself upright by the end of the game and I was in AC. The heat finds it way into your bones and still manages to fatigue you regardless of where you are. I came home and collapsed. I was in bed by 9 and slept through the night until 4. I’m exhausted still. I sleep I’m exhausted, I…
