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Tag: Multiple sclerosis

Friday is here again

Friday is here again

I am playing mahjong today for the first time since the coronavirus. I’m not sure how long I’ll be able to play but I am hoping I can sit for 2 hours at least. Unfortunately my wheelchair cripples me more than I’m already crippled. It’s the muscles in my core (a reader of my blog explained this to me). I’m reclined in my comfy chair, not putting strain on my muscles. In the wheelchair, I am sitting up. There is…

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Kesimpta was denied

Kesimpta was denied

My neurologist and I decided we were going to switch to Kesimpta by my next infusion date. https://multipleexperiences.org/2021/04/26/possibly-switching-to-kesimpta/. My doctor wanted to start the process in July although my next infusion date isn’t until September. We entered the prescription into the pharmacy to start the process. It was less than 24 hours later that I received the denial from my insurance. The denial reason was that this medication wasn’t necessary and there may be other medication that can met my…

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Beyond Weight Loss

Beyond Weight Loss

Good morning. I am slightly behind schedule this morning because I didn’t really feel like getting out of my bed. I slept great too. However this time it was Minx who kept moving in and out from under the covers. I finally gave up and got up. I actually ate breakfast this morning for the first time in years. I never ate breakfast so eating that early was not something I am use to. I watched this video over the…

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Determined to walk

Determined to walk

These weeks are going by super fast. It’s Friday again already. Obviously, guess I didn’t really need to point that out. I just feel like things have been on hyper drive lately. It’s bizarre. I mean we are already through half of the year 2021. Didn’t we just celebrate the New Year? Does time speed up as you get older? I turn 50 this year, in November. I remember throwing a surprise party for my mom when she turned 50….

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New addition to my workout

New addition to my workout

Is the summer over yet? I’ve already had enough of the heat and more importantly the humidity. I am thankful for my hair straightening giving me one less thing to worry about. I was never a fan of the summer even before my diagnosis. I was never one to cherish the sun. I have very fair skin so I burn easily and then I turn right back to my white complexion. I’m the perfect comparison for anyone who wants to…

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What you doing this holiday weekend?

What you doing this holiday weekend?

Friday again. Got big plans for the 4th of July weekend? I have been staying close to home on this holiday since I brought Boomer into my life 15+ years ago. When a 70lb bowling ball jumps into your lap cowering in fear, you tend to start adjusting your plans. My Marshmallow and Zoey were always fine with fireworks but Minx is not. https://multipleexperiences.org/2021/06/28/firework-anxiety-in-minx/. Let’s be honest now, where was I going anyway. It’s hot and humid out, I’m in…

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Distended stomach, possibly the MS Hug

Distended stomach, possibly the MS Hug

My Firestick is set up with a photo album called puppies. It is the random pictures that are used on the screen like a screensaver. I have over 300 photos in that album and yet the same pictures would appear every single time. It has been this way for 6+ months. All of a sudden this past week it is showing some of the older photos in that album. I’m seeing pictures of my Boomer and Marshmallow I haven’t seen…

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Firework Anxiety in Minx

Firework Anxiety in Minx

Fireworks have already started being shot off by me. Not even big ones. The ones that you buy on the side of the road for cheap. They make more noise than light up the sky. My Minx has been going crazy. By far he has the worst reaction to fireworks than any other dog I’ve owned. He gets crazy, barks nonstop while running laps. It’s bad. I knew that I was going to need something for him other than the…

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Today, yesterday and the week

Today, yesterday and the week

I woke up this morning with a headache. Not the way I wanted to start my day. It is going to rain. Thankfully it isn’t a migraine. I actually haven’t had one of those in a while. Hopefully I don’t jinx myself. I have a happy day today. Lots of people coming over. My sister and her kids but more importantly my aunt and uncle. I haven’t seen them since before the pandemic started. I lived a few blocks from…

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Weight loss frustration

Weight loss frustration

I’m frustrated today. I’ve joined an online program for weight loss. I’ve at my 3 month mark and I’ve gained 5lbs. Yes GAINED. I am the most health-conscious fat person I know. I’ve stopped eating vegan some time ago when I switch my home meal delivery service. I use cook unity now https://www.cookunity.com/landing-referral?referral_code=jams440863. I get to pick from over 100 different meals each week and I love the food. Forever conscious of the food I eat they also offer a…

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