People write in their journals all during this event, I blog. Partially because my penmanship isn’t so good anymore and my hand tires out and because this is where I work out my sh@t. Today was fine until the last ten minutes before lunch. We did a soul retrieval meditation where you find your inner child and hold them close, becoming their protector. Keeping them safe, loved and cared for. Bringing your inner child back into your heart. This is…
Not a bad view to wake up to this morning. I was exhausted. Slept without a bathroom break, that is a very rare. I didn’t move all night long. I needed that. It was three days that I didn’t sleep well. I was starting to get cranky. Today I lead my very first group meditation. I’ve been around meditation since I was 10 but I never guided a group. I could critique myself but I why would I. Of course…
A 45 minute trip from Saugerties to eat breakfast at the greatest pancake place ever. I did come off Keto for the morning and it was worth it. I had the greatest chocolate chip pancakes. The place was packed. We haven’t gone there in over 3 years because my sister hates the wait, trip and calories. To me, it was worth it. However the most amazing part of this whole thing was when I walked in sitting down was my…
The minions in Saugerties. I loved this. It was out front of someone’s home but I made my step dad stop so I could get a picture. I love minions, how cute is this? We also went by the park and they had the most incredible mums. This was only a part but it was just so pretty. I love this life up here. So different then the suburbs of Long Island 3 hours away. I’m going to my retreat…
I was in a car for a 3 hour drive yesterday and I have to report that my strength came back. I was able to walk for the remainder of the day with little issue, or I should say my normal issues. However as I sat there my legs actually hurt. They felt sore like I ran a marathon prior. Obviously I didn’t run any marathons I just fatigued severely with MS. The episode the day before really shook me…
What started out as a good day ended pretty horrible. Getting the last few items together for me trip, I ended up severely exhausted. I don’t even know if exhausted is the right word. I had to get something in my daughter’s closet for her and it required me to go to the floor. I really knew this was bad because I was so tired, I just didn’t realize how bad. I couldn’t get up. I didn’t even have the…
When was the last time you had one of those? I went into bed my usual time, around 9:30. I usually watch tv a little before closing my eyes. I feel asleep and slept until 3:30 before I had to use the bathroom. That is a record for me. A long stretch. I feel back asleep and woke up at 7:30 and I was awake and refreshed not groggy and still sleepy as I have been for many mornings now….
I did something I never do, I put physical therapy with occupational therapy. This is the fatigue kind of exhausted where everything in my body is just done. I did it because I had to cancel on Friday for good reasons. I’m going away. First I’m going to parents weekend and seeing my daughter in Albany. Then I’m going to spirit junkie master class 2. I did the first class over a year ago in NYC https://multipleexperiences.org/2017/05/30/mandatory-sisters-to-voluntary-best-friends/. I wrote this…
What fun yesterday was. My MS friends and I joined a beginners class to learn mahjong. I must admit I did have a lesson before with my mom and my girlfriends which was a lot of fun but it was difficult organizing everyone to get together again. I’ve been wanting to learn mahjong for a long time. I originally brought the idea up to my MS girls because we are around during the day and I thought it would be…
The chill is in the air. I have officially put my summer shorts away. I’m changing the comforter on my bed. I am so happy it’s fall. This is my favorite time of year. I love watching the leaves turn. I love Halloween and especially Thanksgiving. My birthday is on Thanksgiving this year. I love breaking out my oversized sweatshirts and sweaters. I love being bundled up under a blanket on the couch with my dogs. Now I have my…
