The most amazing thing happened yesterday, I slept through the night. I’m not talking about until 5 AM, I’m talking about not getting up until 8:30 AM to first use the bathroom. I don’t think that has happened to me once in the last 15 years. I couldn’t believe it. I wasn’t even about to have an accident as I emerged from my bed. I was in total bladder control. It was like a miracle, a gift from the universe….
Still humid in NY. It rained but that didn’t help. However, i did see after tomorrow temperatures start to drop. Cross your fingers. I added another permanent link to an article that talks about different kinds of pain and how it effects sleep. That includes our wonderful multiple sclerosis symptom of restless leg which many of us deal with. They had some very useful tips so check it out. I also have the MS Gym link on my permanent links….
Good Morning to everyone. I think I’m officially through all my infusion side effects now. I’m happy to say I’m doing ok. Now I’m waiting for the New York weather to start resembling normal weather for the end of September. I’m ready to turn of the AC and bring out my comfy sweatshirts I love so much. I find the fact that it is humid very annoying. I love sweating during my workouts but hate sweating when I’m not doing…
First let me say it is difficult to write my blog in my current position. Minx likes to snuggle in my neck. I am not complaining because they are so cute. Plus I’m not having a good day and I need a lot of love. I woke up tired and with a migraine. Not a good combination. The weather in New York is not only warm but humid. Weather, Infusion or just fatigue. I was doing my MS gym exercises…
Yesterday was so rough. Like complete physical exhaustion rough. Wishing I didn’t have to use the bathroom rough. Each time I had to get up was so much effort. Is this still from the infusion? Or is this from the weather change? We’ve had some crazy weather changes over the last week in New York. One day it was 70° then all of a sudden it dropped to 50° I actually had the heat on one day. I was bundled…
I’m chatting with my stepmom yesterday and the conversation about my aide comes up. First like everyone else is the question of an aide for the weekend. I am still not there as I’ve told every other family member who wants me to have the coverage. Then she asks me what about at night? To which I make the mistake of replying, “I don’t need an aide at night. I haven’t had a fall in ages. ” I immediately say…
I’m having one of those mornings. I started sneezing yesterday and woke up not feeling great. I decided to sleep in which was until about 8:45 when Zoey decided it was time for kisses. My friend and fellow blogger just lost one of her dogs yesterday and it was weighing heavy on my heart. RIP sweet Tiger 🌈🌈🐾🐾. I was happy to have the kisses from Zoey. I was up anyway Just as soon as my feet hit the floor…
I think I’m through the worst of the infusion side effects now, more or less. I didn’t have the greatest weekend. By the end of the days my legs felt very weak. I did sleep on my chair both nights. Thankfully I did because Saturday night, without my water pill, I was still up every two hours to use the bathroom. My legs would have been too weak to get me up and down into my bed. I made the…
This blog is coming to you live from my living room floor. I did not make my transfer well after my exercises and slid off of my comfy chair. I was in perfect position to get myself up but knew I had one shot at it. My legs failed and back down I went. After flopping around on the floor trying to change positions, I finally gave up. My aide will be here soon I don’t think my puppies mind…
It’s funny because all my complaining last week about NOT getting my infusion leads to this: I feel awful. Please, please give me my medicine. Pump me up with all this shit so I can feel lousy.  kind of makes you wonder what the hell I was I fighting for. All anxiety for four days straight. All so I could feel horrible. Rituxan Infusion Finally Done but still wasn’t smooth. It never fails someone always asks me, does it…
