This blog is coming to you live from my living room floor. I did not make my transfer well after my exercises and slid off of my comfy chair. I was in perfect position to get myself up but knew I had one shot at it. My legs failed and back down I went. After flopping around on the floor trying to change positions, I finally gave up. My aide will be here soon I don’t think my puppies mind…
You honestly can’t make this shit up. I’m sorry for cursing in line one of my blog but I am so aggravated right now I don’t even know where to start. At 8:45 my phone rings and it’s CVS pharmacy asking me when my infusion is. ARE YOU KIDDING ME??????? I’m like you have got to be joking. I called three weeks ago to start this process. They were so helpful, so nice. I was on the phone for an…
I called the pharmacy first thing this morning and they reassured me that my Rituxan will be delivered first thing tomorrow morning. I am not going to call my infusion nurse and I’m going to hope for the best. Normally my infusions don’t go smoothly. There always seems to be a problem somewhere through the process. When the pharmacy changed I thought, great another infusion to give me agitation. Then it was all arranged weeks in advance. I was shocked….
I never watch TV through my TV carrier. I always watch through my Firecube. No matter what it is, unless it’s something that I record, I’m never on my TV. That being said, it’s also very rare I see commercials. However I was catching up on old Bravo shows that I neither recorded or watched while they aired. On the Bravo app, there’s commercials. When you’re watching an entire season of some thing you end up watching a lot of…
I think I’m going to stop blogging on Saturdays. I’m not sure if it’s because of the summer or Covid but my stats on Saturday have been so ridiculously low for a while now. It actually has been dictating my Saturday posts making many just pointless ramblings. So multiple experiences will now come to you Monday through Friday. Plus in all honesty my weekends are fairly quiet especially with my daughter gone. Hopefully it will just improve the posts I…
I can’t believe it’s been six months already. Well I guess it has because all my reminders went off. Actually about a week after my last infusion I started receiving phone calls to set up my appointment. It was crazy. Actually I thought CVS specialty pharmacy was crazy. I never used them for my Rituxan or my Ocrevus so I was so confused why they kept calling me. Sure enough another change with my insurance. Great, because those have always…
I went to the urologist on Friday to discuss Botox in the bladder.The last of the week trip to urologist Botox for the bladder. What a genuinely honest and patient doctor this was. He came in and knew that I needed questions answered and was prepared to sit and talk. Not only was that nice of a doctor in general but it was nice of a doctor during these times with Covid. He was very honest when he answered and…
I put up a permanent link to the MS gym on my homepage. I really encourage anyone with any disability to check this out. I have no affiliation with the gym. I’m not making any money. I really have put up this link because I honestly feel this is an amazing website. I’ve been doing one of the programs now for about 8 weeks and I’ve seen a difference. that’s a big deal. I’ve had MS for 22 years. It’s…
It’s Friday, this was such a long week I am very happy to be here. I couldn’t imagine having to work. I’m dreading driving and I only have to go down the block today. This week has definitely been an abnormal week for me. Starting with my traumatizing weekend The horrible weekend tale. Multiple Sclerosis at it’s worst, A new aid My new aide, PT therapy Occupational therapy in my home and today is the urologist. Compared to other weeks,…
I’m very happy to report that my new aide is extremely nice, has been helpful but most importantly likes my dogs. If the person couldn’t get along with my dogs then they couldn’t get along with me. It’s only been three days now compared to my last aide of 3 years so of course there is an adjustment. Thankfully, it is not at all as difficult as I thought it could be. She lives with her sister and brother very…
