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Tag: living with multiple sclerosis

In my defenselessness my safety lies

In my defenselessness my safety lies

I’ve had a blog about this in the past. This is from a course in miracles, and is and always will be my favorite lesson. It was always the hardest lesson for me learn because I am the queen of defense. When someone would say something to me, I always jump to my own defense. If I felt backed into a corner, I would claw my way out. Am I cured, absolutely not, but I’m a 1000 times better. The…

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Have a very happy hump day

Have a very happy hump day

It’s the hump day. That middle of the week where it’s all downhill to Friday. I’ve been up since roughly 5:30 this morning. I’m exhausted. I couldn’t sleep. I should change that, I couldn’t fall back to sleep. Not sleeping is like an instant bad day with MS. I just wrote the ticket for the day. Not that I could’ve controlled it, I just know how my body is when I don’t sleep. My daughter was up all night studying…

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Searching for an answer

Searching for an answer

I blog every day. However I have to admit, some days I have no idea what to say. I just start writing and whatever comes out, comes out. I ended up putting a title on it at the very end. Today is one of those days. I can write about packing and how tired I am, but I think I’ve expressed that I’m about 8 blog posts already. I made an appointment with my neurologist on Thursday to discuss what…

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I’m getting stressed, can I get this done?

I’m getting stressed, can I get this done?

Started the day off with a fall. Nothing serious, I just a tripped over something. Couldn’t regain my balance and down I went. I think I tripped over a sweatshirt. It was nice that as I was lying on the floor, and both my dogs looked over at me. My little puppy even came off the bed to check to see if I was OK. Never the way I’d like to start the morning. Have to be honest, the stress…

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The reality of my situation

The reality of my situation

It’s been four days that I have owned the condo. However it’s only been three days that my new scooter has been in my condo. I have to admit it, life is a lot easier in the scooter. I’m getting tired doing the walking. Every day is a struggle and it’s just getting harder and harder. My steps are getting slower and slower. I do the simplest task and I am just completely wiped out. Then I have to walk…

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Me and my dogs

Me and my dogs

It’s Friday again. That was fast. These weeks seem to be speeding up. Could you believe Christmas is a week from Monday?Didn’t we just say it’s the last month of the year? In 16 days is the new year. On Monday, Zoey, my French Bulldog, will be with us for a year already. Unfortunately, Christmas Day, marks a full year that my Boomer, my 70 pound English bulldog, has been gone a full year. One happy and one sad. My…

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Not losing weight and no answers why…

Not losing weight and no answers why…

Very frustrating. I’ve now done two separate blood work tests and no answers. The bloodwork my neurologist requested showed six different deficiencies in all my B cells which was expected. That’s what Ocrevus, my main medicine for MS, is suppose to do. The rest of the panel including my thyroid was fine. Two days later bloodwork was drawn from my OB/GYN. Here I was checking to see if I was possibly in pre-menopause. When she called me she informed me…

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I own a condo

I own a condo

Technically I don’t own it,  but it’s mine. But I happy day it was. I’m sharing my picture which I normally would never do because it’s not a flattering shot at the smile on my face was pure joy. This is my mom and my stepdad with me. They were just as happy. It was exciting to go to the condo with my own set of keys and open the door and see this…. My own blank slate. It was…

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It’s TODAY

It’s TODAY

oh my God it’s today, we close on the condo. We all meet at 10 o’clock this morning and by 11 o’clock, I will have the keys to my new place. It’s so surreal. I was there yesterday to do the walk-through and it was basically clean but there was still some stuff laying around. Today when I come in will be my blank slate. Today I’ll see the condo for the first time with absolutely nothing there. I’m so…

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An attempted bombing in NYC

An attempted bombing in NYC

BREAKING: Attempted bombing in NYC subway at Port Authority bus terminal on 42 & 8. The suspected perp is the only injury. My daughter was much calmer in her text to me this morning, There was a bombing on 42 street station so we couldn’t go through it. I know that there are over 8 million people living in NYC but I worry about mainly a handful of people. My daughter being the one I worry about the most. I…

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