Overheated and under slept. Not a good combo to wake up with. I shut my AC off last night because I was cold. Of course it was ridiculously humid when I got out of bed. I had hours to turn it back on. I was up between the hours of 4-6AM and the time I feel back to sleep between 6-8 weren’t restful. Needless to say I woke up behind the MS eight ball already dragging my feet and having…
I’ve been staying home a little more lately because I haven’t been feeling great and the weather. I’m sleeping a lot more and even when I get out of bed I’m forcing myself up more so then wanting to get up. It is a horrible feeling to be so tired after you’ve slept for 10 hours. If anything I’m forcing myself to get out of the house. I feel like all I’ve done is blog about my MS symptoms lately…
I’m always preaching about adapting and I had to make another adaptation for myself. I bought a commode to leave by me to avoid the “accidents”. Too many times I’m just steps sea and it happens. I’ve had the order for the commode since I was in the hospital last year with cellulitis. I kept saying I didn’t need it, my bathrooms were close enough. My caseworker asks me every month because it was recommended by the nurse at my…
I might feel a little more charged and ready to tackle another week of activities. I think I was just operating without enough data off that maybe my batteries weren’t getting recharged. I was able to get my workouts done each morning and then relax all afternoon. I just love watching the boats and jet skis on the water and this weekend was so busy with activity it was great. I was in my happy place. Unfortunately I had to…
I’ve been run down lately. The words “I’m tired” have once again been part of my everyday response to “how are you”. I’m not sure when I became so tired again but I know I’ve started canceling plans because of how I feel. A beautiful weekend and I’m inside with all my windows open and a great view. Sometimes you just need to rest. The only thing is it doesn’t really help. Fatigue is a strange thing because it isn’t…
It is four steps from my bed to my bathroom. I always had this goal to be able to make it to my bathroom unaided. To get up and safely walk to the bathroom. A few years ago I could, why couldn’t I do it again? I have a progressive disease, that’s why. I could probably stumble through the four steps and make it to the bathroom but the word safely wouldn’t be in that sentence. I have fallen even…
I sneezed all day yesterday. I sneezed so much I asked people to stop saying “bless you”. I couldn’t take hearing it anymore. I think I used a half a box of family size tissues. I felt awful by the end of the night. I finally took my pure Oregano oil and On Guard oils from Doterra and went into bed. I slept and didn’t sneeze all night. I woke up this morning stuffy and a little drippy. I took…
It’s getting hot outside. The summer is coming and my hibernation will begin. Most people can’t wait for the nice weather and the glorious heat of the summer, I’m not that person. I have multiple sclerosis and I am heat intolerant. Heat or high humidity can make many people with multiple sclerosis (MS) experience a temporary worsening of their symptoms. Doctors believe that this occurs because heat causes nerves (whose myelin covering has been destroyed from MS) to conduct electrical signals even less efficiently….
I spent many years in denial. I would pretend it was all good until I had a relapse, well at least that’s how I appeared to the outside world. Those closest to me knew me better. They were witnesses to the tears from the shots or those horrible flu-like symptoms I suffered for the first 12 years of my illness. Those shots were a constant reminder to me that I was sick. I was terrified of needles yet I learned…
I was asked if I’d write a paragraph or two about contacting the MS Foundation for help with purchasing my handicap van. I jumped at the chance because they have helped me a few times over the years. They are another amazing resource to those of us with MS https://msfocus.org/. This is my rough draft I’ve was diagnosed with multiple sclerosis over 21 years ago. It has been a long road with many speed bumps along the way. I first…
