Well good morning to everyone. Happy Monday. I am dictating this through my new iPhone. Hopefully the dictation goes better than the old phone, after all the issues I’ve had dealing with the purchase of this new phone, at least something needs to go right.You can’t make this up….  I must say, so far, it’s working really well. I’ve had a tough weekend, I’m still just not feeling great, not sickness wise, more MS issues. i’ve slept in every…
I wasn’t feeling well all day yesterday. I actually napped most of the day. Well I had the TV on and my eyes closed. For me that’s pretty much napping. I just didn’t feel well. No fever, no aches but my muscles felt sore. That was the best way for me to describe it. I went to sleep early but unfortunately that didn’t go off quite as I intended. At about 2 o’clock I was woken up with bathroom issues….
Hello again, it is once again Monday. I’m very happy to say my aide will be here today. Unfortunately, it will take me some time to recover from the last week doing it mostly alone. Even having food prepared and only doing what I absolutely had to do, it was a rough week. There is a reason I have an aide. I sometimes feel like it is really just to babysit me but truth is the amount of energy it…
Another night of interrupted sleep. You know it was a bad night when you already have 6 boxes of stand credit on your Apple Watch that just reset at 12am. I was up every other hour to use the bathroom. The only time I actually slept longer than two hours was from 6:30-9. I wish someone could explain that one to me. I don’t drink a lot at bedtime. I didn’t even use the bathroom that frequently during the day….
I’m exhausted. I just can’t start this blog any other way. I’ve been tired all week, shocking, I know. I think a major part of my fatigue has been the broken arms of my wheelchair. It was so difficult to get myself in position with that broken arm. I had my appointment yesterday. They were coming between the hours of 12-4. They showed up at 6:45. I was just so thankful they came I didn’t care what time it was….
Yesterday I purchased one of those massage guns. I’ve been looking at them for a while because sometimes I’m in such pain from spasticity. Last night was one of those nights where out of nowhere my whole back a neck tightened. I always describe this like someone took a fork and twisted it like they were trying to get spaghetti twirled around. Except it’s not spaghetti it’s my tendons. The area just becomes so tight so fast. It starts at…
Yesterday was not such a great day. I wasn’t even able to get through my workout. I was interrupted by a trip to the bathroom that unfortunately showed my fatigue. I must give myself credit here because we all know I usually push instead of stopping. Persistent isn’t always a good thing. I had physical therapy later in the day and I did some walking. However I hit fatigue fairly quickly with that too. Things went downhill from there. The…
I’m in a crabby mood today. I’m frustrated. They finally called me about my wheelchair at 5:30 last night. I didn’t recognize the number so I didn’t pick it up and they told me to call back. Of course they close at five so calling back did nothing. I’ve been dealing with this chair that looks like this It has been incredibly difficult let alone not safe. I’m frustrated trying to maneuver and not hit things because I’m steering almost…
For the many bad days of multiple sclerosis, there are better ones as well. Yesterday was one of those days. I started off with a workout as usual. My energy level was definitely high and I was able to double up on all the arm exercises. I had one of those workouts where I was sweating and my heart was pumping. I was tired but in a good way when I was finished. The way you should feel after a…
Friday was a tough day. I wrote how it started Persistent isn’t always a good thing but it never got better. I was exhausted most of the afternoon. My older sister came for a quick visit with her family but she too was having a tough week. I opened a bottle of wine for her. She poured some for the both of us. One of my favorite wines a JLohr Cabernet Sauvignon, thanks to dinners with my dad, I always…
