Since yesterday didn’t quite work out as I wanted I’m trying again today. Got my fur babies close. I haven’t worked out since Monday. Giving my body the break it needs. Hopefully I’ll be able to sleep more and the phone won’t ring all day like it did yesterday. This is all part of having MS and I understand that. It is a difficult part of the disease but I’m doing what I can. I’m a MS warrior like so…
Writing this from the comfort of my bed. I am hoping a day in bed recharged my batteries. I know it might not help but I am going to stay in bed anyway. Unfortunately I was woken up at 8am from my security booth with another aid appearing at my house. Made no sense and was severely aggravated by the mistake. After 10 phone calls the situation was handled but I had to be woken up to fix it all….
I’m just having a tough couple of days. I am just so tired and my body isn’t recovering yet. I hate this feeling but I can’t even complain. I haven’t felt like this in a long, long time when my energy is drained for so many days in a row. It is a horrible feeling but I do have the means now to make things easier for me. Yesterday I did manage to do my Turbo Jam Beachbody workout. I…
Today is mahjong. I’m very excited I didn’t play last week. I’ve been very focused in the gym working my core to help me with the forward and backward movements in the game. I can normally make it through 3 1/2 hours of play but I still have issues and fatigue by the end. It isn’t as bad as the beginning when I first started to play. It is amazing what will fatigue the body. If I do a workout…
I can’t imagine my life without this van. It was time to be in a wheelchair and I didn’t have the means to accomplish this. It took a long time and help from so many people. I still can’t thank them enough. I have a life again and I can go places without everyone worrying; how will I get in, will I be able to get there, will it be too much etc. This van wasn’t only great for me,…
Old Mc Jamie had a twitch eieio with a twitch twitch here and a twitch twitch there here a twitch there a twitch everywhere a twitch twitch Old Mc Jamie has a twitch eieio. It made for a rough night of sleep. It was one of those nights where my medicine just didn’t help through the night. I twitch which is both annoying and uncomfortable and prevents me from falling asleep. I also have my big toe symptom where it…
And we’re back, it’s Monday again, doesn’t it seem to happen so fast? I just find the weekends go so quick and I don’t even work anymore. I’m not really complaining because each day is similar for me but on the weekends I’m kind of my own which I generally come to appreciate. I won’t lie, the weekends can be very difficult because no one is usually here. So I lie very very low and usually do very little. I…
My five minutes of fame. ?. My little write up about how I’ve benefited from the MS Foundation https://msfocus.org/ came out this month. My writing was split on two pages so it was difficult to picture for you to read but I did my best. Pretty neat. First time my words and certainly my picture has ever been published. Btw I’m Jamie from Freeport just in case you missed that part ?
July is ending today. I made it through the month. Only one more long month of summer to go and I should be good. It’s just these two months that are difficult for me the other 10 I can get through. However I’m still jealous of my little sister in San Francisco with that perfect mid 70’s weather year round. That would be perfect. Anyway I can celebrate successfully navigating another month of July. This was an uneventful month which…
Fear of Missing Out (FOMO) this was a good topic of conversation last night at dinner with my good friend Sharon. Ten years ago we’d push ourselves to go out ever night we could for that fear of missing out. Nothing was worse than hearing the next day about an amazing night that you weren’t a part of, even worse were the inside jokes that came from that one night you missed. Sharon said it best, she let go of…
