I had to get work done in my condo. I needed to make my bathroom handicap accessible. It is inside. I have a grab bar and a stall shower but the doorway was so small I couldn’t get my walker in let alone my wheelchair. It was on the list of things to do to make my life at home more accessible. I have two bathrooms in my condo. I usually use my daughter’s because I keep my bedroom door…
I have to say this was a really nice office. The whole staff was super nice but the doctor was extremely nice. He spent a lot of time with me discussing the issues with constipation and multiple sclerosis. What a nice man he was. After a lengthy conversation together, the diagnosis was chronic constipation. Nothing shocking there, I knew that as did my referring neurologist. It was what should we do about it that needed an answer. He asked me…
Provigil or it’s generic Modafinil reduces extreme sleepiness due to narcolepsy and other sleep disorders, such as periods of stopped breathing during sleep (obstructive sleep apnea). It is also used to help you stay awake during work hours if you have a work schedule that keeps you from having a normal sleeproutine (shift work sleep disorder) https://www.webmd.com/drugs/2/drug-16964/provigil-oral/details I’ve taken this drug for over 10 of my 21 years having MS. We decided to add it back in again recently because I’ve been suffering from fatigue Neurologist appointment complete….
I feel a little down since my neurologist appointment the other day. I haven’t shaken it off. I’m not down about having MS, I’m down about MS causing me to gain weight. Between the medicine, my age and lack of physical ability I can’t control my weight and I am very sad. I spent my entire life battling my weight. I was always up and down on the scale since I was a teenager. I’ve read about and tried every…
I made the decision to hide my profile for the few summer months. I get too overheated being out and about in the summer heat. It just isn’t the right time for me. I realized a few things in the short time I was active both about myself and others. There are people out there that could have interest in someone in a wheelchair. The interest varies I’m sure but I did get contacted by many people with my main…
I didn’t cry. I didn’t leave happy but I didn’t cry. I don’t leave with good news anymore so it is hard to be upbeat. I had three things on my list to discuss: Bathroom issue Fatigue Weight All discussed in my blog yesterday Neurologist check in tomorrow. This was the outcome. Bathroom. I was correct and I’m sorry to say this is a common problem amongst people with multiple sclerosis, due to lack of muscle control to lead to…
I have one of my neurologist appointments tomorrow. I have two neurologists. One is the specialist in NYC at one of the big hospitals. She prescribes my main MS drug, currently Rituxan, plus recommends anything in clinical trials like biotin or statins. She’s a great neurologist but I don’t consider her my main neurologist. That is the one I have the appointment with tomorrow. This is the neurologist that diagnosed me 21+ years ago and has been my doctor the…
Summer is a great season. It’s many people’s favorite. Being outside at the beach, on a boat, or at a pool basking under the sun’s warmth. However when you have multiple sclerosis, or any neurological disease, chances are it is not. As that temperature rises outside all of the MS symptoms act up making it a difficult season. This is called the Uhthoff Phenomenon. Uhthoff’s phenomenon (also known as Uhthoff’s syndrome, Uhthoff’s sign, and Uhthoff’s symptom) is the worsening of neurologic symptoms in multiple sclerosis (MS) and…
I have to share my exciting news: I would like to personally congratulate you as your blog Multiple Experiences has been selected by our panelist as one of the Top 50 Multiple Sclerosis Blogs on the web. https://blog.feedspot.com/multiple_sclerosis_blogs/ This was a big thing for me since so many of the blogs that I read and follow or on this list. This list is my list for reference and information as well as my blogging friends that I look forward to reading about. To be…
I had physical therapy in the morning. I didn’t do everyone of my exercises but I did all of my hard ones. My therapist and I cut it short because I actually started overheating. My cheeks turn red is my first sign. I start becoming warm even though I may or may not be doing much and then I start sweating. With that my MS symptoms get worse. This is why I rarely wear blush on my cheeks because I’d…
