It’s been four days that I have owned the condo. However it’s only been three days that my new scooter has been in my condo. I have to admit it, life is a lot easier in the scooter. I’m getting tired doing the walking. Every day is a struggle and it’s just getting harder and harder. My steps are getting slower and slower. I do the simplest task and I am just completely wiped out. Then I have to walk…
The first snow is supposed to fall today in New York. I always loved the snow. I never liked driving in it but I loved to look at it. I love when it’s quiet and everything is white. You look outside the street the world just seems transformed and peaceful. Everything appears so different. However after that snow, what a mess. There are huge piles of snow because the plows. There are always parking spots that are taken because of…
One of the greatest things about my blog, is the feedback I’ve gotten from people that have known me for years. It’s the first time they really seen into my life on a daily basis. The truth is as soon as the how are you feeling question is asked, I immediately, say ok, how are you? I mean really what was I going to say to them, I had an accident today I peed my pants or or maybe I…
I always call it a scooter, but technically I guess it’s a wheelchair. I really wanted the hoverRounds MPV5. When I called it was over $4000 and of course my insurance wouldn’t cover it. My thinking was I was going to wait until I became Medicare eligible and get it then. Medicare pays for it. The problem with that outlook is first I’m not gonna be eligible for Medicare until, two years after the start of my disability which is…
These days come fast, don’t they? I have to say, it’s been very busy for me. Good busy buying stuff for my new condo, but busy. I’m exhausted and it’s Monday I didn’t even do anything. I was out both days this weekend shopping. I had buy new locks the door. May not sound like such a big deal, but I have multiple sclerosis and it’s getting worse. I fumble a lot with keys and sometimes the dexterity in my…
This blog was inspired by another MS blogger, who like me, has had this disease along time. Her positive spirit is always an inspiration. https://trippingthroughtreacle.com/2017/11/28/accept-adapt-succeed/ It wasn’t one time, it’s been many times. The first was the day I got my diagnosis. I didn’t understand what MS was. There wasn’t an internet yet I could search. I had to look it up in an old set of encyclopedias that were in my home. It had maybe two paragraphs in the…
What’s your worst and MS symptom, besides fatigue ? At first I would’ve always answered the numbness, but eventually you get used to it. Not used to it in the sense that it feels normal, use to it in the sense that this is how it is. My hands and fingers are so numb all the time. I’ve lost all tactile feeling and sometimes can’t tell the difference between an item that is wet or dry, cotton or silk and…
My birthday is in 2 days. November 22. I haven’t paid much attention to it with everything else going on, could you blame me? It’s tough to go through and pack 11 years worth of stuff. It’s tougher when you have MS. I could hire people to pack and move for me but that’s a lot of money, so I’ve been doing a little each day with my aide. I have only so much stamina in me each day so…
It’s a dreary day today. It’s raining outside. My apartments all dark except for the light of my iPad. That’s OK, I don’t have much going on except for packing. I’ve been talking so much about my new place I haven’t talked much about MS. I finally was able to see my physical therapist to get some exercises for when I fall and there’s nothing around me to help me get up. I’m on the physical therapy maintenance program so…
I’m so excited to finally write this post. I’m moving!!! After 11 years in this apartment, 21 years in the same town, I’m leaving. My mom and step dad bought me a condo in a neighboring town. It has two bedrooms and two bathrooms. For the first time ever in my life I will have my own bathroom. I will have no more stairs. I am located right off the elevator. I have a pool, fitness room, and tennis court….
