Browsed by
Tag: MS

I’m not disabled, I’m mom

I’m not disabled, I’m mom

I did well yesterday My words are my actions. I managed to use the walker until after 2pm. I completed 3 sets of 10 squats but I can admit I pulled myself up on the last few. I was done!!! I’m happy to say that I recovered and had strength to get myself up into my bed without assistance and without lowering the bed to the flat position. I was proud of myself. My daughter comes into my room every…

Read More Read More

My words are my actions

My words are my actions

One thing I can say about myself is I’m not a slacker. If I say I’m going to do something, I’m going to do it. I wrote about my weakness in my legs the other day My muscles are getting weaker. In the blog I realized I had to do something. So I first thought on safety. I can’t fatigue myself to the point I can’t transfer. My daughter has been so helpful when my aid isn’t around but she’s…

Read More Read More

My muscles are getting weaker

My muscles are getting weaker

I have to be honest, my legs are super tired by the end of the night. I’ve been having some real issues getting myself into bed. Luckily my daughter has been around to assist and readjust my legs. My original thoughts were why? I’m resting most of the day after I exercise. Then it occurred to me, I’m moving even less now than the little I was moving before. This is bad. The more I’m in hibernation, the weaker I’m…

Read More Read More

My hair is grey and my nails are breaking

My hair is grey and my nails are breaking

Seems everyone is saying the same thing, at least everyone in my age bracket. I don’t care so much about my nails and truthfully I could do my own hair. I just know I’d never match my color so I’ll leave it to the professionals. I’m getting my magic sleek done as soon as this is over anyway and it changes my hair color. Picture makes me laugh. I’m grateful this is what is consuming my mind these days. I’ve…

Read More Read More

Working out with MS disability and weakness

Working out with MS disability and weakness

Good morning. I just finished my LesMills workout. I’ve been doing Sh’bam on there which is cardio dancing stuff. It’s fun but I wish I could be doing some of their other workouts like Grit or Pump but my body’s weakness doesn’t allow for that anymore. I have to revise all workouts I do to a chair. Then I have a problem holding weights. I’ve purchased hand weights that I wear like gloves and use them for all my workouts….

Read More Read More

What a multiple sclerosis spasm looks like

What a multiple sclerosis spasm looks like

Last week I wrote a post about all my different spasms. My multiple sclerosis spasms. I was sitting around yesterday as my right leg was doing the one type of spasm that you could actually see. So I got it on video .img_2066-9 This is why I take so many medicines at night. If I have this spasm while I’m trying to sleep, I won’t. It does happen and incidentally I have many blogs dedicated to my lack of sleep….

Read More Read More

Teleconference neurologist appointment

Teleconference neurologist appointment

I have my neurologist appointment this morning. My second neurologist appointment admits the coronavirus isolation. Once again this will be a teleconference appointment as was my other one. I’m thankful that both my doctors know me so well. What would this be like if I was a new patient or something? I can’t imagine. This appointment was always scheduled as a checkup but now it is also serving as my wheelchair evaluation. I need to be seen by my doctor,…

Read More Read More

Hot Water helped with Choking

Hot Water helped with Choking

So I took an extra triple magnesium capsule on my way to the bathroom yesterday. I can normally swallow pills without water. Comes from years of taking pills. I wasn’t able to actually swallow the capsule for some reason but I needed to use the bathroom. I left it in my mouth for the second until I could get water from the sink. I just didn’t plan on one of my rock skipping ass off the toilet bowl moves. I…

Read More Read More

My multiple sclerosis spasms

My multiple sclerosis spasms

My spasms have been extremely annoying lately. I have a few different types and it depends what it hitting when. My back has probably been the most frequent. It starts with this warm feeling that spreads across my back and reaches from left to right. It continues to my right hand where it paralyzed it for a second. Then I have the one in right hamstring. This one you can feel building up. It’s like you welcome the spasm when…

Read More Read More

FDA approves Zeposia (Ozanimod) for Multiple Sclerosis

FDA approves Zeposia (Ozanimod) for Multiple Sclerosis

Amidst all that is happening in the world, things are still happening in the world of MS. Another oral medication for the treatment of MS. Read the article here: https://multiplesclerosisnewstoday.com/news-posts/2020/03/26/fda-approves-zeposia-ozanimod-oral-rrms-active-spms-cis-therapy/

Verified by MonsterInsights