Browsed by
Tag: MS

A Friday potluck

A Friday potluck

Ok where to start… I took my first dose of Adderall yesterday and I must say by the late afternoon I was feeling pretty upbeat. Today is day two and I honestly have no idea if I even took it. Right now I don’t feel as awake as I did yesterday. I’m feeling wiped out and it’s only 10am. I didn’t even exercise yet. My infusion for Rituxan is scheduled for September 15. I made so many calls to get…

Read More Read More

Swimming in not quite laps

Swimming in not quite laps

I have to laugh at myself. I went in my pool yesterday but it was murky. They had put chemicals in it to clear it up. I waited 30 minutes outside the pool for all the levels to be alright but it was still murky. I went swimming anyway because I was tired and wanted to swim at least for 30 minutes. I learned a valuable lesson. I can’t swim straight!!! I’d be swimming along and end up at a…

Read More Read More

Still out of spoons

Still out of spoons

My dogs like candy corn. What a strange thing for them to eat!!! Both of them gobbled every piece I put in front of them. I ate candy corn for lunch and dinner, good diet. I had a very long day and didn’t eat until after 5 o’clock. By then I just grabbed food. I went to the grocery store and I’m a sucker for candy corn. I wasn’t planning on eating it but my night when I got home…

Read More Read More

Trip to the neurologist

Trip to the neurologist

I am going to my neurologist today. I needed a form filled out by him that has to be within 30 days of my last appointment. Of course my last appointment was in the beginning of July so I had to come in again. Yet this probably isn’t a bad thing because I can once again address the exhaustion. I felt so tired yesterday I got into my bed around 6. My body was just so tired I couldn’t fight…

Read More Read More

Me and my wheelchair

Me and my wheelchair

I made it!!! Another summer survived. I’m ready for my jeans and sweatshirts. Im ready to turn off the AC. I’m ready to open my balcony windows and let the crisp air in through the condo. I’m ready to snuggle under warm blankets. I did ok this summer mainly because of my van and wheelchair. I couldn’t have done most things without the use of my wheelchair. Thankfully my van provides me with that ability to be mobile and safe….

Read More Read More

Yesterday, today and tomorrow

Yesterday, today and tomorrow

I went out yesterday for the first time this week. I went to mahjong. I almost canceled and I’m so glad I didn’t because as always it was so fun. I did have a tough day and at times I thought I was going to completely collapse over the table. I just couldn’t hold myself up but then the strangest thing happened. About 30 minutes before the game ended I felt better. Like I could sit up straight without falling…

Read More Read More

Bike MS

Bike MS

This is my step brother’s 11 year biking for MS. He bikes in my name and for so many others that suffer from the disease. I received his email this morning and as always he fills my heart with love because of his fundraising efforts and the fact he does this in my name every year. 11 years of hard work – and 7 years of top fundraising efforts. And all thanks to you. Every year, donors like you have…

Read More Read More

Bed day 2

Bed day 2

Since yesterday didn’t quite work out as I wanted I’m trying again today. Got my fur babies close. I haven’t worked out since Monday. Giving my body the break it needs. Hopefully I’ll be able to sleep more and the phone won’t ring all day like it did yesterday. This is all part of having MS and I understand that. It is a difficult part of the disease but I’m doing what I can. I’m a MS warrior like so…

Read More Read More

Staying in bed

Staying in bed

Writing this from the comfort of my bed. I am hoping a day in bed recharged my batteries. I know it might not help but I am going to stay in bed anyway. Unfortunately I was woken up at 8am from my security booth with another aid appearing at my house. Made no sense and was severely aggravated by the mistake. After 10 phone calls the situation was handled but I had to be woken up to fix it all….

Read More Read More

Not feeling good

Not feeling good

I’m just having a tough couple of days. I am just so tired and my body isn’t recovering yet. I hate this feeling but I can’t even complain. I haven’t felt like this in a long, long time when my energy is drained for so many days in a row. It is a horrible feeling but I do have the means now to make things easier for me. Yesterday I did manage to do my Turbo Jam Beachbody workout. I…

Read More Read More

Verified by MonsterInsights