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Tag: Multiple sclerosis

My comfy chair is fixed

My comfy chair is fixed

My week ended on a much brighter note that it began. My comfy chair, which has still been out of order, has now been fixed thanks to my amazing abilities and a $13 Amazon part. I’ve spent countless hours on the phone with Bob’s furniture realizing they had no idea what part I was actually talking about. I finally got so frustrated and got a supervisor who had a clue. The part that I was trying to get, that I…

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Once again on the floor

Once again on the floor

Well unfortunately I had a tough morning. It seems my stomach is still having issues. I had to shower upon waking up this morning. I wish I knew what was causing all of this unsettling in my belly over the last few weeks. I’m scared to take anything because the fear of it binding and I experiencing the alternative is just as bad. However this leads me to make many trips necessary and unnecessary to the bathroom in fear of…

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That didn’t go to plan

That didn’t go to plan

Today’s exercise didn’t go quite as planned. This is the first time I couldn’t get up off the floor and overdid it trying. I finally realized I needed to stop for a little and try again so I decided to write my blog. I’m not really tired but I’m hot so a little cool down should help. My head wasn’t in my workout today. My dogs were super annoying. I had Zoey licking my face or any other exposed area…

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Does getting out of bed count?

Does getting out of bed count?

Good morning world. I’m in my chair after my workout drinking a cup of ice coffee. My first cup since Sunday. I spent the day in bed yesterday after being up all night with stomach issues. I emerged from my bed after 4pm to feed the dogs and was back asleep again by 8pm. I slept until almost 9 this morning waking up only one time to use the bathroom. I may have had some stomach issues but I obviously…

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Better out than in

Better out than in

I had quite a few “accidents” this week. It seems my body likes to be either bound up or flowing free. I have yet to master a medium ground. Frustrating as it was, I figured at least I’d have a weight loss this week but even that wasn’t so. Oh well at least that has a medium ground it hovers around on. It got me thinking about when some of these issues first started showing up. I realized how long…

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Time for handicap plates on my van

Time for handicap plates on my van

I’ve been wanting to get handicap plates on my van since I purchased the vehicle. There was a whole thing with the plates because I purchased the van in New Jersey and I live in New York. At that time I would’ve had to surrender the plates and re-register after I just paid the NYS 2 year registration fee. New York State isn’t very good at giving you money back and prorating so I just stuck with my handicap tag….

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Why I believe in the MS Gym

Why I believe in the MS Gym

Ive had pretty significant changes that have been happening regarding my multiple sclerosis symptoms lately. In the grand scheme of things they might not seem significant but for me they are. My feet are pointing and flexing. They actually do it even better than this little video but I took this right after I worked out. My chin muscles are moving my feet really well. Not bad for someone with foot drop. I started phase 2 of standing strong and…

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Snowstorm results and flooding expectation

Snowstorm results and flooding expectation

Good morning world. How are you this fine Tuesday morning? The big snowstorm didn’t leave as much as anticipated, from what I can see from my window. It rained last night and that definitely changed things. Cars are easily going down the road However that little snow and ice doesn’t work well for me. Power wheelchairs don’t like those conditions much. My handicap van ramp likes it even less. When I first got my van I opened the ramp by…

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Snow day 2021

Snow day 2021

Look, I’m getting my snowstorm. Unfortunately, it’s not a blanket of white because plows already came through but it’s still snowing hard. The expectation is a total snow accumulation of 8-12 inches. I thought it would be more because it actually started around 8 last night. The wind was howling too. I should know I’ve been up a majority of the evening. My Sakara food delivery comes every Sunday night between 12-6am. Since I’m in a gated condo, I always…

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Workout, nails and good friend

Workout, nails and good friend

I just finished my workout. I’m happy to report I did the whole thing from beginning to end without a long break in between already on day 4. I’m kicking ass. I have a pretty good system to get me off the floor using my wheelchair. I might be able to use my own strength but I know that if it doesn’t work, that mistake can be costly. I really don’t want to deplete all my energy getting up. I’ve…

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