I keep meaning to write. I have every intention. Then at the end of the day, I realize I didn’t write again. Normally I actually write my blog the day before but since WordPress had an update, I schedule the blog but it never posts. I finally got annoyed and stopped writing the day before and then stopped writing on the day. So here I am. I would love to say so much has happened since I last wrote, but alas, it has not. I had my Rituxan infusion with no hiccups or side effects. I got my shower redone.

I can now completely get my wheelchair in to transfer to the seat. I was excited. I took my first shower and I had a few bobbles with transfers. I have to figure them out. I was ready to do just that and my wheelchair breaks. I had my hair straightened and extended the legs up. They failed to be able to go back down.

It’s very hard to get in/out of the wheelchair when the legs are fully extended up. They are in the way. I am having difficulty transferring on a good day. Can’t do it when legs are in the way. Certainly can’t transfer to the shower chair. So I got this new shower that I can’t get into.

I called for an appointment to get it fixed. They gave me a date of June 30th. June 30th!!! Could you imagine??? I flipped out. How am I supposed to function in my chair like this for a month? I was finally offered two options, go to them or an appointment on Friday, June 2nd. I would say it was the easy decision but I was supposed to be in the city June 2nd for an appointment with my neurologist. Same appointment that was supposed to happen in December that never happened due to the transportation being so late. Well my new caseworker screwed up the paperwork and my transportation was denied so I was able to be home for the wheelchair appointment on Friday. Otherwise I had to get somebody to drive me in my van to their shop which was proving extremely difficult.

So that’s what is happening here. This is just the last few weeks. Everyday it is something. I am truly exhausted. That is the other reason why I don’t write. I am bedridden the majority of time. Exhausted when I do do anything. My life has little to write about yet I still am always dealing with bullshit.