I can’t make this sh@t up. I go to my car yesterday and press the button and the door opens and ramp comes down as normal. I go into my van and press the button to close and my ramp goes in but the door doesn’t shut. So I try to press the button again and now the ramp won’t come out. Well after several attempts of pushing each of the five buttons that operate the door/ramp my aid and…
Well the 8 month journey to purchase my van was really worth the experience I had yesterday. To be able to press a button that opens a door, sends down a ramp that I can just wheel myself into is more liberating than I even expected. What makes this even better is I am finally able to use my main wheelchair which is a Hoveround MP5 . Using the travel scooter for many years was convenient. It broke down and…
It was official on Friday that Bob my Honda Civic was turned back in to the dealership. I name all my cars and my last one was simply Bob. My first black car since the one I got and totaled the day after I got my drivers license. My dad had a thing with black cars. He felt that they were for funerals and was very against it when I choose black for the color of my first car when…
I got a call from the finance manager yesterday going over a couple of details and she said they were delivering the van this Wednesday, like the day after today. WHAT??? They haven’t received any payments from my grants and we aren’t planning on laying that money out. “They leave it on their accounts receivable side, it’s not a problem”. As wonderful as this is for me, other than the grant from Nova, they didn’t even ask me for me…
I received word this morning: I am pleased to inform you that your application has been selected by the committee for funding. Please see the attached letter for details and instructions for fulfillment of this grant. I was approved for the last grant for my handicap van. This was truly the difference between the van being still very difficult to pay for each month and being affordable. I have never been so nervous opening an email. I never doubted that…
Yesterday was an exciting day. My step dad took me to New Jersey to meet with a gentleman from Mobility Works. This was another handicap van dealership. What I liked about them is they had a much bigger selection of used vans. I now realized I had to get a used van so it was important to have choices and options. The company I was communicating with from the beginning just didn’t have that access to that kind of inventory….
I thought I’d write a blog on the update on my van. Unfortunately, I did not get as much in grants as I was hoping for which was somewhat disheartening. It was my own fault because I just got a number in my head that was delusional. I was able to secure $5,300 in grants from the MS Foundationhttps://msfocus.org/ and the MS Hope Foundationhttp://www.mshopefoundation.org/. I was denied from the Chive Charity https://chivecharities.org/ and the National Multiple Sclerosis Society doesn’t do…
I thought I’d start sharing with you each week some of my spiritual lessons that I’ve learned during the week as a review on Saturday. Maybe somebody out there would find this helpful or could understand it. Maybe somebody out there had a question or comment or wanted to know more. This week my big lesson was I was trying to control a situation. Anytime you’re trying to control an outcome of the situation, spiritually, that’s your ego. That’s something…
I’m Jamie. I was diagnosed with Multiple Sclerosis in 1998. I have been lucky that I’ve been able to be on my feet for many years but my time to be in the wheelchair is here. I have been a single mom since my daughter was 7. She was born with a progressive hearing loss. She received bilateral cochlear implants. I dedicated most of my years to getting her the help she needed in school both academically and socially. My…
I had a condo board meeting yesterday. I love where I live but the condo needs a lot of work. I know they are looking for solutions from the homeowners of how to get that work done. I think that they should combine our assessment loans take out additional funds and just do what needs to get done and stop piecing together each project. However, technically I’m a renter. My mom and step dad pay the maintenance fees so I…
