Yes, I’m still in the hospital with a pneumonia. Today marks day 12. I can definitely have another blog about what is happening especially since being immune suppressed isn’t helping the situation. Most people look at February 14 as the day of love but it will never be that for me. No, for me it will always be the weekend back in 1998 when I was moving into my new house. Valentine’s weekend and my left foot started to go…
I already received a call from my doctor this morning, MRI showed no new activity and my normal MS abnormalities. Exactly as expected. Like I said yesterday in my blog I haven’t shown anything on my MRI in years. I continue to get worse because I’m secondary progressive MS. Read the post on Dr. Krieger’s pool theory for further explanation. https://multipleexperiences.org/wp-admin/post.php?post=5174&action=edit. Well at least that’s done for the year. I also made an appointment to have a sonogram done on…
Today I have a very long MRI. It is of the brain, cervical and thoracic spine with and without contrast. I would say this is probably at least my 22nd MRI since being diagnosed with multiple sclerosis over 22 years ago. I am no stranger to these tests. I have actually had numerous life epiphanies during my MRIs over the years. One was when I decided I wanted to be a bookkeeper/accountant. I started to look in the papers for…
July is ending today. I made it through the month. Only one more long month of summer to go and I should be good. It’s just these two months that are difficult for me the other 10 I can get through. However I’m still jealous of my little sister in San Francisco with that perfect mid 70’s weather year round. That would be perfect. Anyway I can celebrate successfully navigating another month of July. This was an uneventful month which…
A great way to spend the day. I have an MRI of the head and cervical spine with and without contrast. This is a long test and I have to be there 45 minutes BEFORE my appointment on top of the long test. That is for them to put in a line making it easier to add the dye during the test. Since I’m known for collapsing veins during this part, I’ll be there early. Neither of my neurologist expect…
My first unofficial MS relapse was optic neuritis in 1997. Six months before my diagnosis. The optic neuritis wasn’t even diagnosed at the time of the relapse it was realized after my diagnosis. I was working in a fast food restaurant as an assistant manager, who was about to be promoted. However, my manager at my current location and I didn’t always see eye to eye. She added a lot of stress to my situation at work. I couldn’t wait…
In having MRIs for 20 years, you get used to hearing the sounds. To me, they are extremely meditative. I end up making words to the beats of the sounds and go into the deepest meditations I’ve ever had. I’ve had several of my biggest epiphanies in MRIs. Each section they do, has this specific to droning sound. I find the more I concentrated on words to the sounds the more relaxed I become. I know this probably sounds weird….
I spent the morning in the doctor’s office for my daughter. I had a 9:00 appointment and wasn’t seen until after 10:00. It wasn’t because she was sick. It wasn’t because we needed to run tests. It wasn’t even an appointment made at our request. It was made because social security required an outside doctor to meet with her for her social security disability application. I thought it was odd, my daughter is deaf, she has prosthetic hearing in the…
It’s a rainy, foggy, and dreary day in New York. I’m a passenger in my own car. I have an early morning appointment at my neurologist in the city. Besides the basic neurological tests, we will discuss the possible switch to Ocrelizumab (Ocrevus) and my MRI results. ive already written about my bulging disk result from the spine.https://multipleexperiences.org/2017/04/01/multiple-sclerosis-symptoms-in-my-head/ My neurologist wrote me yesterday “good news, the brain MRI is stable”. It is good news, I know that. However it’s been the…
I’m scheduled for an MRI today I am looking forward to it. I think I touched upon this topic one other time but since I haven’t had an MRI since I started blogging, I’m talking about it again. Why do I like going to an MRI? I can tell you it’s not for the results. I’ve had multiple sclerosis for 19 years, the MRI’s show what they are going to show. However, I used to get them on average two…
