I’ve been staying home a little more lately because I haven’t been feeling great and the weather. I’m sleeping a lot more and even when I get out of bed I’m forcing myself up more so then wanting to get up. It is a horrible feeling to be so tired after you’ve slept for 10 hours. If anything I’m forcing myself to get out of the house. I feel like all I’ve done is blog about my MS symptoms lately…
I’m always preaching about adapting and I had to make another adaptation for myself. I bought a commode to leave by me to avoid the “accidents”. Too many times I’m just steps sea and it happens. I’ve had the order for the commode since I was in the hospital last year with cellulitis. I kept saying I didn’t need it, my bathrooms were close enough. My caseworker asks me every month because it was recommended by the nurse at my…
A quick short note today. Had occupational therapy this morning kicked my ass. Such a difference from last week of what I was able to do. I can’t be too upset because I know this routine. Some days are better than others and today wasn’t a great day. It is getting hot outside and the OT room was warm. I was sweating and I was appropriately dressed and doing very little. Another one of my MS symptoms is my body…
It is four steps from my bed to my bathroom. I always had this goal to be able to make it to my bathroom unaided. To get up and safely walk to the bathroom. A few years ago I could, why couldn’t I do it again? I have a progressive disease, that’s why. I could probably stumble through the four steps and make it to the bathroom but the word safely wouldn’t be in that sentence. I have fallen even…
I spent many years in denial. I would pretend it was all good until I had a relapse, well at least that’s how I appeared to the outside world. Those closest to me knew me better. They were witnesses to the tears from the shots or those horrible flu-like symptoms I suffered for the first 12 years of my illness. Those shots were a constant reminder to me that I was sick. I was terrified of needles yet I learned…
I was asked if I’d write a paragraph or two about contacting the MS Foundation for help with purchasing my handicap van. I jumped at the chance because they have helped me a few times over the years. They are another amazing resource to those of us with MS https://msfocus.org/. This is my rough draft I’ve was diagnosed with multiple sclerosis over 21 years ago. It has been a long road with many speed bumps along the way. I first…
I hope everyone had a lovely weekend. I wasn’t able to share Mother’s Day with my daughter but I was able to share the day with my mom and stepdad. The food was fair but the company was great. We were seated at this huge table for three people and we all moved our chairs to one side to be near each other, that love. It was the first time we took my van together. My stepdad drove, my mom…
I had another accident yesterday as I was sleeping. I was sleeping, how horrible is that? I was in the shower cleaning myself at 12pm. WTF????? This has been a brutal MS week for me. Between being stuck on the floor A honest look at an MS bad day and accidents this has been an extremely dis heartening week. Yesterday I scratched up my car. I’m still in my reserved handicap spot but it isn’t the van spot. I have…
I have many things in place that keep me safe from falls on a daily basis and I thought today I’d list each one: Hooveround MPV5 this is my everyday motorized wheelchair that I use all the time outside my condo and sometimes in my condo. Plus it is used always with my handicap vehicle. My drive rollator walker. I use this around the condo if I feel strong enough. 3. My Med Alert system. I wear my bracelet everyday….
This is in regards to a number of my blog posts like A honest look at an MS bad day orBackdoor chute suggestion worked. I talk about the embarrassing symptoms that I have that it hopefully helps someone else to feel less embarrassed. It is another part of my disease as out of my control as my gait and my numbness. It isn’t something that I can control anymore than I could control another MS symptom. I get why we…
