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Tag: ms over 20 years

Backdoor chute muscles missing signals

Backdoor chute muscles missing signals

I haven’t blogged about it but I’ve had serious back door chute issues this week. It seems the door is open and people come through unexpected or it stays closed and I can’t get them out. I went weeks with it open and now I went the complete opposite. My stomach was so bloated causing physical pain. It was great for my diet because I couldn’t over eat if I wanted too. My stomach could only hold so much food….

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Working out with MS

Working out with MS

Overheated and under slept. Not a good combo to wake up with. I shut my AC off last night because I was cold. Of course it was ridiculously humid when I got out of bed. I had hours to turn it back on. I was up between the hours of 4-6AM and the time I feel back to sleep between 6-8 weren’t restful. Needless to say I woke up behind the MS eight ball already dragging my feet and having…

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My beautiful condo

My beautiful condo

I was sitting here with my blog opened trying to decide what to write when both of my dogs jumped on my lap. This is where they usually are but sometimes my Marshmallow gazes out the window in the AM. I spent twenty minutes giving my fur babies puppy love and gazing myself out of my own window and lost any topic I wanted to write about. This is my favorite time of day. My body is tired and a…

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Fatigue and multiple sclerosis

Fatigue and multiple sclerosis

I’ve been staying home a little more lately because I haven’t been feeling great and the weather. I’m sleeping a lot more and even when I get out of bed I’m forcing myself up more so then wanting to get up. It is a horrible feeling to be so tired after you’ve slept for 10 hours. If anything I’m forcing myself to get out of the house. I feel like all I’ve done is blog about my MS symptoms lately…

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Bowel and bladder problems and MS

Bowel and bladder problems and MS

I’m always preaching about adapting and I had to make another adaptation for myself. I bought a commode to leave by me to avoid the “accidents”. Too many times I’m just steps sea and it happens. I’ve had the order for the commode since I was in the hospital last year with cellulitis. I kept saying I didn’t need it, my bathrooms were close enough. My caseworker asks me every month because it was recommended by the nurse at my…

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A quick short note today. Had occupational therapy this morning kicked my ass. Such a difference from last week of what I was able to do. I can’t be too upset because I know this routine. Some days are better than others and today wasn’t a great day. It is getting hot outside and the OT room was warm. I was sweating and I was appropriately dressed and doing very little. Another one of my MS symptoms is my body…

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Sometimes you need to just rest

Sometimes you need to just rest

I’ve been run down lately. The words “I’m tired” have once again been part of my everyday response to “how are you”. I’m not sure when I became so tired again but I know I’ve started canceling plans because of how I feel. A beautiful weekend and I’m inside with all my windows open and a great view. Sometimes you just need to rest. The only thing is it doesn’t really help. Fatigue is a strange thing because it isn’t…

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Four Steps

Four Steps

It is four steps from my bed to my bathroom. I always had this goal to be able to make it to my bathroom unaided. To get up and safely walk to the bathroom. A few years ago I could, why couldn’t I do it again? I have a progressive disease, that’s why. I could probably stumble through the four steps and make it to the bathroom but the word safely wouldn’t be in that sentence. I have fallen even…

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Not feeling well today

Not feeling well today

I sneezed all day yesterday. I sneezed so much I asked people to stop saying “bless you”. I couldn’t take hearing it anymore. I think I used a half a box of family size tissues. I felt awful by the end of the night. I finally took my pure Oregano oil and On Guard oils from Doterra and went into bed. I slept and didn’t sneeze all night. I woke up this morning stuffy and a little drippy. I took…

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I’m getting hot

I’m getting hot

It’s getting hot outside. The summer is coming and my hibernation will begin. Most people can’t wait for the nice weather and the glorious heat of the summer, I’m not that person. I have multiple sclerosis and I am heat intolerant. Heat or high humidity can make many people with multiple sclerosis (MS) experience a temporary worsening of their symptoms. Doctors believe that this occurs because heat causes nerves (whose myelin covering has been destroyed from MS) to conduct electrical signals even less efficiently….

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