I’ve been so tired lately. I never really took in to account how my body would react to work being done in my place. I knew I would be shifted around slightly but didn’t think it was a big deal. I was clearly wrong. By the time the afternoon comes around I’m struggling to get myself to the bathroom. I’m back to dreading every time the need comes. Sometimes I’m so tired that the hesitancy I talked about recently Bladder Hesitancy is happening every afternoon water pill days or not. I think I wrote that blog when the work first started. It made me more aware of hesitancy. Now it’s happening almost daily. That’s how tired I’ve been.

Right now the work is about 75% done. I’m back on my comfy chair, puppies in lap. I just haven’t recovered. I spent the entire weekend in this position and every day I was exhausted, asleep by 9. Except for last night that resulted in very little sleep. I finally got out of bed at 7am, did a very weak exercise and haven’t been able to move since. This tank is on empty. Problem is that even when it’s getting a refill, it is far from a full tank. I feel like every day I am waking up and I have less and less to work with.

Unfortunately my Rituxan infusion was only a couple of weeks prior to the start of the work in my home. I was feeling tired from the infusion which is typical I’m feeling ok, another infusion in the past. Then I went into this adventure which I unexpectedly underestimated and I don’t think my body ever caught up. I feel like I am becoming more and more, handicapped, for a lack of a better word. I’m running out of energy to do anything. My life is pretty limited to begin with. I hope this isn’t signs of things to come. There is a reason I write about the four walls of MS. https://multipleexperiences.org/2020/10/07/my-four-walls-of-multiple-sclerosis/. Fatigue closes those walls in slowly.